Parkinson's UK Edinburgh Branch

Parkinsons UK Edinburgh Branch Annual General Meeting 2018 Wednesday March 14th at 2.15pm Goldenacre Bowling Club, Edinburgh Parkinsons UK Edinburgh Branch AGM 2018 TODAYS PROGRAMME Welcome! A) AGM Business B) Our Volunteers & Special Reports Including ERIG, and much more ...

C) Dr Bethany Whiteside Parkinsons UK Edinburgh Branch AGM 2018 BUSINESS AGENDA 1) Apologies for absence 2) Minutes of the meeting held on the 8th March 2017 3) Treasurers Report and Accounts for the year ending 31/12/17 4) Short Report of the Branch Committee by the Chair 5) Appointment of Hon Independent Examiner, Susie Tastard CA 6) Election of Office Bearers and members of the Committee Hon Treasurer Weir Brown, Hon Secretary Liz Hume, Committee members Cathie Quinn, Heather Robertson, Eileen Blackwood, Annette McLeod, Louise Ogilvy, Bill Wright, Judith Shepherd, Hagop Bessos, Scott Wilson 7) Election of Hon Chair David Adams 8) Election of Hon Vice-Chair Patrick Mark

9) Any other competent business Parkinsons UK Edinburgh Branch AGM 2018 Income & Expenditure 2017 Income Expenditure 27,213 Total Income of which: Donations 8,468 Fundraising

1,770 In Memoriam 4,297 Events 3,181 Singing 4,515 Other (activities, membership, etc) 4,982 Parkinsons UK Edinburgh Branch AGM 2018 Total Expenditure 43,730 of which: Activities

16,244 Room Hire 8,375 Singing 5,908 Research 1,000 Events 2,840 Admin, printing, mailing 9,363 Deficit (16,517) Fundraising 2017

Donations General Donations Gift Aid Tax Reclaimed In Memoriam Group Donations 7,487 981 4,287 Jubilo Society Dunbar Golf Club Ladies Corstorphine Probus Club Fundraising

1,770 Art Sales Burns supper 980 280 Sponsored walk 254 Parkinsons UK Edinburgh Branch AGM 2018 Dalkeith Singers

Craigentinny Bowling Club Personal Donors & Fundraisers 2017 Special thanks G Reynolds L Hume Mrs Auld I Hannah C Wilkinson S A Vick

J A Akerman C Scott M Jack M A Black Parkinsons UK Edinburgh Branch AGM 2018 Branch Strategy 2017 We stand for Research & Better Personal Wellbeing Treatment

Community in Action Parkinsons UK Edinburgh Branch AGM 2018 Branch Committee 2017 Report Activity Highlights Supporting Research & Better Treatment Lecture, September ERIG meetings New Dundee Group Neurological Voices For Personal Wellbeing 10 Continuing Activities Meetings with Nurses Aquatic Exercise

(hydrotherapy) in preparation Parkinsons Community in Action Monthly Branch Meetings Summer & Christmas Lunches New - Parkinsons Cafs Exploring new links with Young Parkinsons Parkinsons UK Edinburgh Branch AGM 2018 BUSINESS AGENDA 5) Appointment of Hon Independent Examiner, Susie Tastard CA 6) Election of Office Bearers and Committee Members Hon Treasurer Weir Brown, Hon Secretary Liz Hume Committee members Cathie Quinn, Heather Robertson, Eileen

Blackwood, Annette McLeod, Louise Ogilvy, Bill Wright, Judith Shepherd, Hagop Bessos, Scott Wilson 7) Election of Hon Chair David Adams 8) Election of Hon Vice-Chair Patrick Mark 9) Any other competent business - Parkinsons UK Edinburgh Branch AGM 2018 TODAYS PROGRAMME A) AGM Business - concluded B) Our Volunteers & Special Reports C) Dr Bethany Whiteside Parkinsons UK Edinburgh Branch AGM 2018

Our Volunteers & Special Reports Parkinsons UK Edinburgh Branch AGM 2018 Edinburgh Branch Research Interest Group AGM review of 2017-2018 Ken Bowler, Group Chair Parkinsons UK Edinburgh Branch AGM 2018 Another successful year. Jan 2017 Talk by Dr Alison Green, University of Edinburgh, on a possible biomarker for Parkinsons Apr 2017 Dr Esther Sammler, University of Dundee,

on genes in Parkinsons, from bench to bedside Sep 2017 Parkinsons Lecture by Prof Andrew Lees Dec 2017 Talks by Dr Tilo Kunath on Stem Cell Therapy for Parkinsons and Leona Braund on Living with Parkinsons Sept 2018 Public lecture by Professor ?? Parkinsons UK Edinburgh Branch AGM 2018 Interested in research? Join the Edinburgh Research Interest Group:

suggest topics and speakers for RIG meetings keep informed about the latest developments let me know and Ill add you to the email list Join the Research Support Network (RSN) keep informed about the latest developments be part of a community of interest with > 4000 members contact Anna-Louise Smith ([email protected]) Become a lay grant reviewer for PUK

Parkinsons UK Edinburgh Branch AGM 2018 Spreading the word Alison Williams, Ken Bowler and Bill Wright invited to contribute to a Special Focus Issue in the journal Regenerative Medicine, entitled: Adventures with Parkinsons: Empowering Parkinsons patients to become active partners in research and treatment Published on-line in November, Regen Med 12, 737742 (2017). Our experiences of participatory medicine, working collaboratively with researchers and healthcare professionals. An opportunity to document and publicise what we as a Branch have achieved in promoting research and increasing public awareness.

Parkinsons UK Edinburgh Branch AGM 2018 Acknowledgements I am immensely grateful to: Patrick Mark, Vice-Chairman, Edinburgh Branch David Adams, Chairman Dr Tilo Kunath, CRM Sheila Edward, Hagop Bessos Members of the Edinburgh Branch: Liz & Bill McBain, Liz Hume, Cathie Quinn, Heather Robertson, Helen Harris, Annette McLeod, Alison Williams, Bill Wright and many others Parkinsons UK: Katherine Crawford, Anna-Louise Smith, Claire Bale Parkinsons UK Edinburgh Branch AGM 2018

Tilo Kunath & John MacPhee with Eradicate Parkinsons?! got the second highest audience at the 2017 Cabaret of Dangerous Ideas Parkinsons UK Edinburgh Branch AGM 2018 Our Volunteers - *New

Alison Williams QL Group, Dance, Research, QMU Anne Chalmers Support Group, Goldenacre, Eventbrite bookings Annette Mcleod Singing, Dance Bill Wright QL group, Nordic Walking, Self Management Course Cathie Quinn Singing, Support Group, Side by Side, Goldenacre David Adams Chair Branch & Committee Meetings, Activities David Waughman* Assisting Self-Referred Aquatic Exercise Eileen Blackwood Young Parkinsons, Ethnic Minorities, Education talks, Parkinsons Awareness Week Hagop Bessos * ERIG, Edinburgh-Dundee Research Initiative, Drop-in Caf, Swimming Harry Gordon* Internship at Anne Rowling Clinic Heather Robertson Singing, Support Group, Side by Side, Bellevue Helen Harris Exercise Activities Co-ordination, Newsletters, fliers, leaflets, Printing, Promotions, Reports Judith Shepherd Committee

Julia Melton Publications, Member info packs, QL Treasurer Ken Bowler ERIG, Lecture, Parkinsons UK Research, Membership, Eventbrite, Website Kenneth Williamson Indoor Bowling Lindsay Mcdermid Art Group Louise Ogilvy Fundraising events Liz Hume Secretary, Minutes, Correspondence, Branch Meetings, Payments & Donations Marge Barker Indoor Bowling Patrick Mark Vice Chair, NHS & Neurological Voices Programme, Neurological Improvement Plan, Lecture Scott Wilson* Chair and Organiser of Edinburgh & Borders Young Parkinsons Sheila Edward Support for ERIG, Backup for Minutes, Support for meetings & activities Weir Brown* Treasurer Parkinsons UK Edinburgh Branch AGM 2018 Inspiring Volunteer Achievement Awards

By the Lord Provost in June 2017 to Edinburgh Branch and personal awards to Cathie Quinn & Heather Robertson Parkinsons UK Edinburgh Branch AGM 2018 Parkinsons UK Au Revoir and huge thanks to Katherine Crawford Gina Allen Betty Thomson

Big Hello to Annie Macleod Scotland Director Alice Hall Volunteer Co-ordinator Abenet Tsegai Local Adviser Parkinsons UK Edinburgh Branch AGM 2018 Special Appreciation 1 Thanks to Kenny Williamson, retiring Treasurer Remembering retirements of Liz and Bill Reviewing Coffee Morning Ceilidh Replacing Braidburn swimming Retiring from Gentle Exercise, Lynne Scott

Parkinsons UK Edinburgh Branch AGM 2018 Liz & Bill McBain (Art Group, Gentle Exercise and Swimming at Braidburn) Parkinsons UK Edinburgh Branch AGM 2018 Special Appreciation 2 Parkinsons Nurses we have regular meetings with Alison Stewart, Tina Daniels and Alison Darbyshire, (and Tracey Fergie, support) Our professionals: Sasha Baggaley, Pilates Kevin Brown, Tai Chi Chris Davies, Thistle Foundation Jen Farmer, Dance

Trevor Jones, Nordic Walking Penny Stone & Ellie Logan, Singing4Fun and welcome to Jackie Rochmankowska, Aquatic Exercise Parkinsons UK Edinburgh Branch AGM 2018 Special Appreciation 3 Goldenacre Bowling Club! For accommodation while Bellevue Chapel is renovating: Parkinsons UK Edinburgh Branch AGM 2018 Branch Committee 2017 Report Personal Wellbeing Art Group

Bowling Cycling Dance Lifestyle at Thistle Nordic Walking Pilates 3 classes! QL Group Singing Support Group Swimming Side by Side course Tai Chi Coming soon Aquatic Exercise

Parkinsons UK Edinburgh Branch AGM 2018 Art Group Lindsay McDermid At the Botanic cottage Parkinsons UK Edinburgh Branch AGM 2018 Indoor Bowling Marge Barker & Kenny Williamson Continues to thrive, 19 fully paid up members of Meadowmill Indoor Bowling Club. We play every Monday 122pm with a break for lunch throughout the year. Held our annual fixture with Fife Parkinson's bowlers last August, Edinburgh winning the trophy. This year the match will be in Fife and we hope to retain the trophy. If anyone would like to try bowls please feel free to join us. We can arrange shoes and bowls.'

Parkinsons UK Edinburgh Branch AGM 2018 Dance for Parkinsons at DanceBase New funding for 3 years just announced! Wednesday 11.30 13.00 (tea/biscuits 13.00 13.30) Participants: regularly 20 + and new people joining and staying Volunteers: supporting us each week in turns Inspirational teachers: Jen, Sophie, Christina Amazing musicians: Robert & Gordie Parkinsons UK Edinburgh Branch AGM 2018

Dance for Parkinsons at DanceBase Events & News Scottish Ballet Christmas invitation to dress rehearsal of the Nutcracker for all classes Joint class with Glasgow 60 people altogether (including Aeya aged 3!) Exhibition of Lindsay McDermids dance pictures, inspired by the class, by the teachers and by other dancers and dances in DanceBase. The exhibition continues in DanceBase Research Dr Grosset & Dr Duncan (Interim report): Dance and Parkinsons disease: exploring the physical and psychological effects of a dance programme in people with Parkinsons disease Dr Bethany Whiteside (AGM presentation) Parkinsons UK Edinburgh Branch AGM 2018

Pilates Mobility stability strength balance Sasha Baggaley Three weekly classes all fully subscribed! Introductory class for new people proposed to start after Easter (contact Sasha if interested) Small fee of 3 per class, payable in a block at the start of each term. Parkinsons UK Edinburgh Branch AGM 2018 QL Group Quality of Life Group Alison Williams & Bill Wright

1st Thursday of every month 2pm 3.30pm (DV & WP!) The Quality of Life Group continues to thrive with 10 to15 people per meeting, welcoming new people as well as regulars Exciting news! QL Group in Fife started after a Christmas visit from Fife PwP. People are very welcome to visit one anothers groups. Parkinsons UK Edinburgh Branch AGM 2018 Singing4Fun Cathie Quinn & Heather Robertson We are not a choir but a singing group and it is fun. Though particularly for People with Parkinsons it is open to anyone who likes singing. No previous

experience required and if you can talk you can sing. The Tuesday group at Marchmont St.Giles is going from strength to strength. One lady who recently joined said I wish I had come sooner Penny Stone Tuesday Group The Wednesday group has dropped in numbers and is in threat of closing. We could keep going if we could get 12 people to join us. The accommodation at Grace Baptist North in Logie Green Road is temporary until the extension at Bellevue Chapel is complete. Ellie Logan Wednesday Group Parkinsons UK Edinburgh Branch AGM 2018 Support Group & Side by Side Cathie Quinn & Heather Robertson Support Group

Last Wednesday of every month (except December). At BB Pollock Pavilion, 227 Ferry Road, 10.30-12.30. A time of sharing over tea or coffee, scones and biscuits. This group too is growing. We have a number of widows who feel they still have something to give. Side by Side A course for carers of people with Parkinsons. Run in the autumn. Dates and venue will be on the website when both are confirmed. This is an opportunity to learn from the professionals about the help and support there is for you. You can read feedback on the website. At the last course we had the record of three men attending! Parkinsons UK Edinburgh Branch AGM 2018 New in April - Aquatic Exercise

at the Astley Ainslie Hydrotherapy Pool Parkinsons UK Edinburgh Branch AGM 2018 Parkinsons Community Action 2017 2017

Membership Committee Branch Website Branch programme, Meetings & Admin Drop-in Cafs Parkinsons UK liaison Newsletter & Member Information Events: Summer & Christmas Lunches, Tea Party, Eventbrite Bookings Burns Supper Parkinsons UK Edinburgh Branch AGM 2018

Intended for 2018 Marketing for Membership (including car sticker) World Parkinsons Day, 11th April 2018 Minorities People stuck at home Young Parkinsons Events More Volunteers Inter-branch liaison Happening in 2018 Napier Students Marketing Project Queen Margaret University collaboration

Lecture in September Young Parkinsons Connections Parkinsons UK Edinburgh Branch AGM 2018 Volunteering Volunteering is great for wellbeing! We need volunteers for activities, especially Young Parkinsons Community Initiatives Outreach for membership Participating in Professionals Education e.g. Public Patient Involvement (PPI) at QMU on 26th March Parkinsons UK Edinburgh Branch AGM 2018 Branch Strategy 2018 We still stand for

Research & Better Treatment Personal Wellbeing Community in Action Parkinsons UK Edinburgh Branch AGM 2018 Special thanks to Committee Members Hon Vice Chair Hon Treasurer , Independent Examiner Hon Sec

Activities Co-ordinator and Organisers Parkinsons UK And all Volunteers & Helpers Parkinsons UK Edinburgh TODAYS PROGRAMME A) AGM Business - concluded B) Our Volunteers & Special Reports - almost concluded C) Dr Bethany Whiteside Parkinsons UK Edinburgh But first . . . . Video from Parkinsons UK featuring our

Nordic Walking Group view here https:// www.youtube.com/watch?v=MS6OkFoB9Vk Video from Parkinsons UK featuring Tai Chi not our own classes run by Kevin Brown but Kevin is happy for us to show this one view here https:// www.youtube.com/watch?v=5JtRXMDlMT0 Parkinsons UK Edinburgh Branch AGM 2018 Dr Bethany Whiteside Dance for Parkinsons in Scotland Parkinsons UK Edinburgh Branch AGM 2018

Branch Office Bearers 2018 Hon Chair, David Adams Hon Vice-Chair, Patrick Mark Hon Secretary, Liz Hume Hon Treasurer, Weir Brown Hon Independent Examiner, Susie Tastard CA Committee: Hagop Bessos, Eileen Blackwood, Annette McLeod, Louise Ogilvy, Cathie Quinn, Heather Robertson, Judith Shepherd, Scott Wilson, Bill Wright Parkinsons UK Edinburgh Branch AGM 2018

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